alendronic acid has destroyed my life

Ive been on Alendronic acid for a few months now. jerky muscles. When my doctor told me emphatically that I couldnt build my bones with diet and exercise alone, I reluctantly said ok, but I want to take strontium. Soil degradation is a process in which the value of the land and its biophysical environment is affected by a combination of human actions and non-natural . Conclusions: Alendronic acid once weekly produced greater BMD increases at both hip and spine sites and greater reductions in bone turnover relative to risedronic acid once weekly. But no issue with my teeth. But its come to my attention that long term , Alendronic Acid Has Destroyed My Life (Everything About Alendronic Acid & When To Stop Taking It) by Reana Jean Cuevas You can only stop taking alendronic acid when your doctor says so. Have been taking alendronic for 14 months now because I had a fall just over 15months ago and broke both knee caps, have been taking them once a week,but I find they make me dizzy so was thinking of stooping them,is this advisable? Took 1 pill of AA. Results are insufficient to support the use of alendronic acid in paediatric patients with osteogenesis imperfect. I started reading this because after being diagnosed with breast cancer part of my ongoing treatment is Letrozole plus Alendronic Acid. I was diagnosed with Preliminary Billiary Cholongistis (PBC) in 2021 and am now informed I have osteopenia (May 2022); informed today that a prescription has been left at my chemist for Alendronic Acid to be taken once a week. I ran on a treadmill for twenty minutes and I could push my weight in kilos on the leg press. I felt so incredibly ill the next day. Ive not taken many of the Adcal, and havent yet taken any Alendronic Acid, and to be honest Im now thinking about not talking it at all, as the possible side effects are really worrying me. the shaking could be from one of the new meds, but it started slightly in the summer. Continue reading for a comprehensive list of adverse effects. As a follow up to my earlier post, on Feb 21st 2021, I am still experiencing side effects as a result of the ingestion of 1 biphosphonate Alendronic Acid 70g tablet on Sunday Feb 2nd. Drinking alcohol for about two standards per day may increase your risk of bone fractures. 4 days after my 6th dose, I woke up in the night with right hip pain. Should there be a next time I will follow my own advice as I believe we all know our own bodies to a degree of course & I will follow my gut instinct!!! Now I am not sure what to do. We would be very interested in accounts of what happens when people take RxISK reports to doctors. I woke up, called my doctor to make sure it was safe to take with a few broken ribs, and I was told yes. Also, have you researched iodine? It may put you at risk of jaw bone damage. I started taking alendronic acid in January 2009. We spoke to the GP & asked if she could come off of Alendronic ,so she did, but now she is having problems with her arms, like a muscle ache. I have v v mild connective tissue disorder (not rare) also. From day one my tummy was not happy & after 8 weeks I suddenly became severely constipated (Literally overnight !!!) Are there any better options to AA which people have found?? Alendronic acid (bisphosphonate) is a prescription medication used to help your bones stay as strong as possible. I am not in your age group Jane bit I can appreciate Yor feeling left out. judy. Is it possible to just stop taking the tablets? Six hours later, left jaw joint tightness, nerves in teeth/jaw became sensitive (lasted a day), runny stools, dry mouth, calf cramps (at night). Whoa, I said, I want to do this with diet and exercise. Its essential to take your dose while your body is upright. Thank you. Took dose 7, and on and off right hip aches, but now radiating to thigh. Bisphosphonates are often the first treatment you'll be offered if you have weaker bones. Everything was find. The my neck was hurting. Alendronic acid is a bisphosphonate drug that prevents osteoclastic bone resorption which is used for the prevention and treatment of osteoporosis. Put on strong doses of steroids. I am 73, have Secondary Progressive Multiple Sclerosis and I was prescribed Aldronic Acid 1 a week since breaking my femur in 2015. In addition, previous side effects were swellings and wealds all over, itching and bloatedness. I had another Dxa scan. Started on Fosamax l6 years ago. But, theres not enough evidence on this claim. Your body naturally breaks down old bones and replaces them with new bone tissues to support your skeletal system throughout life. Nothing too spectacular to report. Do not take alendronate if you have low calcium levels. It has further become clear that my symptoms were not and are not brought on by activity per se, but by an increase and deepening in my breathing, as if the extra air I take in is poisoning me in some way. However, it usually takes 6-12 months of ongoing medication to get its full benefit. I have now vowed NOT to take another tablet, after all at my age, I feel I have nothing to lose! This full head pain is extremely bad. Many thanks for all your comments re Alendronic Acid, these have been most helpful in my decision to take this drug. I have had several extrane simpthoms after taking alendronic and had to give it up due to a dental treatment. Following breast cancer they want me to take Aromatase Inhibitor along with a Biphosphonate Clondronate or Zolendronic so my question to everyone out there will these other biphosphonates result in similar pain? Take the medicine on an empty stomach. If you were prescribed to take 10 mg of alendronic acid, swallow one whole tablet daily. Also taking into account that I have & still do.Lead a very active & healthy lifestyle! It knocked me out so I stopped it. Taking alendronic acid for at least a year can halve your chances of fractures in your wrist, hip, or spine when youve entered the menopausal stage. GP is arranging for a bone scan . Hi i have been given AA but couldnt take it due to stomach problems now they are thinking of sending me for infusion could i ask what natural solutions u are using as i was told I couldnt replace bone without AA am very worried about an infusion. With the agreement of my GP I have now stopped taking the tablets. My mom who is 76 has taken 7 tablets, she stopped due to pain in her hips legs and groin. Despite the doctors assurances that it wasnt addictive, I became addicted. Glad Im not alone with these problems,thought i was going mad, hi I had zolondronic infusion no problem ,tablets i cant tolerate so I have hit and missed with them ,I told my consultant and the nurses at the hospital but went unanswered said they would sort it ,five weeks a go I fractured my spine so now Im waiting to see what they going to do Ive been honest with them said i skipped a lot cos I felt sick all the time ,Ive opted for infusion,told them that I did tell them ,but now because Ive fractured my spine Im worried that my bone is bad ,bone density scan and hopefully they will sort infusion out for me .I dont like the tablets,I take vitamin d and c .Im trying to help myself just hope its not too late .wouldnt mind I fell off a ladder about two years ago straight onto my back legs and head fell backwards flat and not a broken bone and I had had a density scan just before the fall. This vitamin helps your bones absorb more calcium. But, because you naturally produce vitamin D3, your doctor might not recommend you take supplements unless you have a deficiency. Carole, you say you were meant to have another scan in 3 years, that is disgraceful that you have not had this. ). If I took slow shallow breaths the pain was bearable. I dont know if these problems have been caused by the AA, but Im now thinking that I should stop taking it and see if my symptoms resolve. I was still a little sore, but improving. jaw ? Reading these reports,i am now worried.am 63 & After taking AA 70mg per wkfor 2months,& all the awful side effects mentioned here,consultant wants to try zoledronate yearly infusion. I read somewhere Fosamax was taken off the market & it caused hair loss. Thank you. I developed teeth probs just before diagnosis so treatment sounds scary if things are made worse by AA. I have recently been prescribed AA and, after researching this drug for its possible side effects and reading your stories, I really do not want to take it! https://info.mhra.gov.uk/drug-analysis-profiles/dap.html?drug=./UK_EXTERNAL/NONCOMBINED/UK_NON_000837661002.zip&agency=MHRA I was prescribed alendronic acid 1x weekly. 2 weeks later I have joint pain in my elbows like broken glass and have pins and needles in my arms and fingers. I have been taking A.A for about 9/10 months. Even a couple of paracetamol would make me ill. And of course I was already taking Seroxat, albeit a very small amount. Please check with your doctor before stopping taking alendronic acid and switching to alternative treatments. and he said he would refer for being sedated,as he said he AA are wonderful tablets but do cause jaw and teeth probs along with everything else Am seriously thinking of coming off of them but want to see the outcome of coming off them and how safe it is. One thing concerns me! so I was looking up side affects of AA which brought me to this site and I dont like what I am reading, so I am going to ring my doctors and have a talk my gut feeling is not to take them. Your doctor will put into consideration the lifestyle changes youve made. Alendronic acid may put your pregnancy at risk. Alendronic Acid prevents the loss of bone that occurs in women after they have been through the menopause and helps to rebuild bone. I took the tab yesterday &.the strange & heavy uneven rhythm actually woke me up last night. The NHS say. Ive been taking Alendronic Acid and Adcal for just over four years and a couple of times felt that my lower face looked slightly strange, nobody else could really tell and it didnt happen that often. Also take two drugs for cholesterol and statins i rattle !! Hi Everyone I had been doing yoga for twenty years. Hi there. HELP! As far as the AA, its track record shows there have been dental issues in some people. My walking is less than a quarter of what it was, but that could be due to a herinated disc. Alendronic Acid is used in the treatment of osteoporosis. As a consequence, my Dr prescribed Alendronic Acid 70mg. You should eat more foods that promote healthy bones. I dont know if this is due to alendronic acid or the letrozole I am taking for breast cancer. I am interested about the post that said you should only really take for 2 years does anyone else have info on this. I wont be taking it as I feel I may be able to find a natural alternative. It was all around my upper body. In the meantime her teeth fell outliterally fell outwhat on earth was happening. By this time my body was still, so I went home feeling scared and utterly distraught. I also went willingly and happily to the gym twice a week and did weekly pilates. After trying a variety of non-drug treatments, I went to the doctor in December 1996 with intermittent insomnia and PMS, and asked for some sleeping tablets. After reading the comments I will not be taking it again. However, your doctor will mostly recommend you at least take the drug for three years to benefit from it for a long time. Hi. My doctor went through the results with me and told me I needed to take alendronic acid. Reading all above, i think i will put myself on a little break, just to see if there is a difference in my condition overall. Next morning extreme pain in my back and kidney area. I am 62 and expected some challenges at my age but this has been a shock! Ive taken a covid test because these days thats what you do if you feel ill at all. I called my doctor and will go in tomorrow morning, even though pain resolved. I was prescribed in 2003 following a crack in my Femur following a knee replacement and the resulting Dexa scan! but from the start have not felt well, stabbing pains dental probs,aching joints,My dentist referred me to a specialist to have 3 teeth removed,but i lost it in the chair so scared ! Maybe tomorrow I will get better direction from the physician. If I apply pressure to my temples, my headache lessens. I just took my 8th dose of alendronate sodium 70 mg. I would say) I was suddenly aware of my mouth being transformed into a state where I was unable to move my lips and then my jaw at all. Tablets the gift that keeps giving, I have just had a DXA scan (following a wrist fracture) and it came back I have really bad osteoporosis. If you missed a dose, take it the following morning and continue taking your next doses on your usual schedule. Im so sorry to hear your situation and how difficult things are for you. Hey Ive been diagnosed with polymialgia rheumatica too i was prescribed predisolone vit d evacol and now AA Im not having any side effects from it yet but reading all of these comments Im worrying about wether I should take the alendronic acid Ive only taken two up to now but have had no problem with it yet It scares you a bit, Hi I have just been precribed alendronic acid I have not taken it yet as I have had a bad cold. The first indication I had that something was amiss was in September 2009 I took three anti-sickness pills and had some very strange reactions. I had a fall/fracture side of leg then DEXA scab and told I had osteoporosis, my reading was -2.6 which I believe is just over normal readings. I am taking much more care of myself with exercise an I am totally sugar gluten dairy and alcohol free. This settled after a few days and I thought no more about it. Like a lot of people I was researching AA70 when I came across this group. I also had pain/soreness behind the eyes and a niggling headache for 48 hours. In rare cases, alendronic acid may cause a serious allergic reaction ( anaphylaxis ). Alendronic acid is generally safe for long-term use and stays in your body. She had to wait months and eventually had the hip replacement. Never in my life have I read as many horror stories and am dumbfounded that medication like this is still being prescribed. No way am I taking another drug, and particularly not this one. Ive not been offered another dexascan in four years but if this swelling goes down my GP can decide what he wants to do about treatment, if any. 2023 The Heart & Brain. I appear to be ding well on them so I am told along with calcium and Vit D supplements. Unfortunately, Im pretty intolerant to most drugs, other than HRT, which I took for 5 years without any side effects and made me feel fantasticuntil my GP refused to prescribe them once I reached 50. My older sister, who had recently discovered she had osteoporosis, had a very bad fall, ironically as a result of a violent reaction to a prescription drug, and broke three vertebrae in her back. It got better in the day, but flared up at night for a few nights, then resolved. Having read & researched online information regarding side effects I accepted that I needed to take the Prednisolone but was not comfortable with ADCAL 3D + Alendronic Acid & especially since my Vitamin D level was so good but was advised to take them taking into account my age of 73years. It was the most frightening and totally incomprehensible thing to have no control over my limbs at all but as I sit and write this, I realise it has become totally familiar. Back to see the same neurologist whose diagnosis this time was that my muscles were very tight so I must be stressed, and if I wasnt already taking it, he would prescribe Seroxat! I compared it with strontium ranelate, which was the drug my sister was taking, and the strontium appeared to have better results. Another problem that really concerns me is that my teeth feel rough, as though the surface is eroding. Stopping and seeing if the symptoms resolve for most drugs is the best way to prove a link some problems with some drugs may take time more time than you expect but will resolve but some may also be permanent. You can only take it with plain water, not mineral water. The drug helps build up bone and prevent bone loss. This is a dangerous drug. She has stopped the tablets. Does anyone know if theres a link between the 2 drugs or if theres a suitable alternative? You would think that and the fact that in Canada a class action suit was brought against the manufacturers of this drug, would be enough to warrant serious alarm bells. I had also gone hypothyroid. take personal responsibility for themselves. If you are taking this tablet once a week . 2 years. Now its probable to be loosing my teeth and I live on social security and am very afraid that my dental health has been irrevocably damaged by this drug. Abstract. Im very concerned, like you & so many others, about the side effects of AA which I have just started today! Really concerned as Ive never ever had bowel problems!!!! Took my 1st AA 2 days ago, since then Ive had constant stomachache, feel exhausted, and tired, and shivering. So I have decided that it must be the alendronic acid and I have stopped taking them its making my life unbearable. I had open heart surgery at the end of December and didnt take the alendronate for a couple of weeks and coincidentally the swelling went I thought maybe it was caused by fluid build up due to my heart condition and thats why it was better. Hi You should be able to have a dexa scan every 5 years. All Rights Reserved. I have been taking this drug since 2006 only to be told today at a meds review that it should only be used for a limited time. What else can I do to improve my post.menopausal condition? I have now been off Alendronic acid for two weeks or so, and at the moment im not noticing very much improvement. They are ok and work fine for first few years ! She was given physiowhat a mistake that was.After fighting to get her x rayed, the doctor phoned her and said that I was right and she needed a hip replacement, her hips had crumbled away. Delighted to report Tum is behaving much better since giving up just hoping the other side effects ( Jaw and Teeth) dont show up unexpected! Your doctor might recommend you take other drugs 30 minutes after taking alendronic acid. Doctor said it was a preemptive measure as my left hip was compromised! Thanks. Armed with more natural solutions which I have been taking anyway but paying more attention now. My entire body jerked violently as if I was having an epileptic fit, but I was conscious throughout. AA scares me to death as 4 months after taking it I seem to have a continues dry sort throat ( weirded really) so I feel I dont want to take it anymore at my age anyway 75. Its been a nightmare for four weeks weeks. I really think the doctors for whatever reason are unable to tell people to eat right and exercise i.e. I tried the Alendronic acid one a week tablet last night and was so unwell that I nearly called an ambulance, my symptoms were very cold ie chattering teeth, pains all over body, sore head,jerking arms and very unsteady on feet, and nausea. My body jerked violently and out of control for hours. Thank you for your comment. A blood test followed and the inflammation was evident in the test, but I did not test positive for RA which I was worried about. Ive just read your post on this thread about Alendronic Acid & was hoping you might share your naturopathic bone protocol supplementation with me. My Seroxat story is classic and a repeat of so many other peoples. Then, you can resume eating and drinking normally. To my surprise he agreed. Ostopenia and had a high risk of a fracture. prevent cancer spreading to the bone. I have taken 2 in total. My story begins in May 2014 when I was 72 and took the first once a week dose of one tablet with a glass of water. If you suddenly stop taking the drug, you might experience severe side effects, putting you at high risk of more bone fractures. This was after I had in some detail again described to him how prior to a jerking episode, my muscles pulled tighter and tighter before a violent release .. he metaphorically patted me on the head and told me to go and have a massage. I was thinking maybe I was dehydrated, so I drank a few bottles of purified water. My bloods were fairly normal although my Vit D was just within normal. Some medications may interact with alendronic acid and may cause it not to work effectively. My opinion is , go and see your GP for advise ! She doesnt have osteoporosis. Have other peoples side effects, particularly bone and muscle pain gone away after discontinuing this drug. Alendronate is used to prevent and treat osteoporosis. I am disappointed in my GP who recommended a NHS Dentist in Melcome Avenue, Wemouth. Store the tablet, oral solution, or oral effervescent form of alendronic acid as directed in its packaging. I have been told to take kale with spinach and brocoli which is full of calcio blended with almond milk before breakfast and before going to bed. It could give you terrible side effects. Due to Covid I only had a telephone consult with an Endocrinologist. When I researched Fosamax/drug intolerance I found it is a reported side effect that people (usually women aged 50 70, of course) became intolerant of other drugs whilst having taken Fosamax for 2 5 years. I had another dexa test in 2018. I also ate one energice bar. I do have quite a high reading of osteoporosos but I feel I need to know what it really does to the body. I also are very intolerant to any meds but my doctor had at last convinced me to trythis and suffice to say I will not be taking any more. Hi Ive had AA and it made me feel terrible! . I was told i had Oesteoporosis of the spine with high risk of a fracture. Participants will receive one dose of active zoledronic acid during the first month after heart or liver transplantation and weekly placebo alendronate pills or one dose of placebo zoledronic acid and weekly active alendronate pills for the first year after transplant. Its recommended to take it on an empty stomach first thing in the morning. The Royal Osteoporosis Society website is very detailed and useful, with info on exercise you should do more of it which must be weight bearing more so than just walking and promote balance. Pharmaceutical drugs are just about making money and not curing people. After 2 weeks of no bowel movement ended up at A&E!!! It works by suppressing the activity of osteoclasts, cells that cause destruction of bone. Hi, my story is very similar but I only found out today that Alendronic Acid has caused my dental problems. Lately i have been feeling tooth pain and have told by the dentist they cannot see me without a letter from my GP if i am taking alendronic acid. Ive been reading all the posts on this forum THINK I might stop altogether does anyone else get these symptoms. https://youtu.be/Gb3G2Kv7kU8, Ive just been perscribed alendronic acid 70mg to take one a week..could you tell me if this is seroxat. There is nothing I can do to stop the shoulder pain, and lower jaw pain, or the chills I get. The dentist recommend my mom to have all teeth in the lower jaw removed (some are already loose) and get denture. Avoid taking it if you have esophageal or throat conditions. She suggested maybe I stop taking the AS but I already had. This pain was far worse than the pain I experience withOsteoporosis! My GP told me to take alendronic acid with the calcium and vit D tabs 5 or so years ago (in my mid 40s), after a DEXA scan showed I had mild osteoporosis already. Singing, to my deep distress, is now out of the question, along with all the other active things I loved to do. Like to leave a reply to louise bird Hi just wondering how your getting on with the alendrolic acid? Sight has deteriorated (but attend Moorfields for regular check ups. My lower face is completely swollen on the left side. Alendronic acid and teeth extraction My mother saw the dentist recently because of gum infection. I was determined that my own actions would build my bones so I only had to take the drug for a short time. Your dosing may depend on your age, how severe your bone condition is, other medical conditions you have, and your reaction to the first dose. I asked her how long wil it take for the fosamax to leave my body, and when will this pain stop. Im not going to take another one and just hope these pains gradually wear off. Feel quite worried reading all these comments but thoughts Id just let people know that my 90 year old mother has been taking AA plus Adcal for about 8 years after two falls in which her wrists were broken ( falls due to hypotension caused by drug she was currently taking.

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